Ethical and Professional
Issues in the Development and Operation of InCrisis Reports
Questionnaires are commonly used to assist in screening, evaluation
and the analysis of
behavior. There exist standards commonly recognized by licensed
psychologists and qualified researchers. The use of computers to interview,
analyze behavioral histories and process questionnaires is an
accepted evaluation method in psychology, health care and behavioral science
fields.
Face-to-face interview and testing using paper-and-pencil methods can
consume a great deal of professional time, with considerable associated expense:
As much as $150 per hour. Using computers greatly reduces the time necessary to
complete an evaluation. However, saving time has not made evaluations any
more accessible and affordable to the general public. There is a scarcity of
mental health professionals or health care professionals who can provide
screening and evaluations. There is also a scarcity of professionals who are trained to
work with children.
Recent development and advancement of the Internet and Web offer
new possibilities to extend the use of computers for screening and evaluation. Online
testing, interviews and questionnaires are increasingly available on the Web.
Online evaluation services are being developed by lay people, health care
professionals, businesses and human services organizations. Many of the
existing services are manifestly unfit and do not meet important and
established standards for development and operation of an online evaluation
service.
There are a number of benefits to the use of online
screening methods. Online methods are potentially useful for individuals
and patients who
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live in remote or isolated areas
-
do not have quick access to qualified health
care
-
cannot financially afford face-to-face interviews and
evaluations
-
need a reliable means to identify and
document behavior and problems
-
need information, answers and guidance
quickly
Behavioral ratings and checklists are a frequently used
and well established means of screening children, adolescents and adults. The use of multiple
informants can provide estimates of the reliability and, therefore, the
validity of results. Behavioral rating and multi-informant instruments can be used
effectively to identify symptoms and signs of behavioral problems, syndromes
and psychopathology. Behavioral observations and ratings over time and from
multiple sources can provide information about the variability and
consistency of symptoms, potential problems and disorders. Online
behavioral screening, evaluation and analysis can be developed to
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identify individuals who exhibit behaviors associated with psychiatric
disorders
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identity patterns of behaviors associated with specific behavioral,
emotional and psychological problems that are not psychiatric disorders
-
identify individuals who exhibit specific behaviors associated with a risk
of violence, injury, accidental death or suicide
-
monitor and evaluate progress or deterioration in behavior
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provide users with education and recommendations necessary to seek
qualified consultation and evaluation
-
educate parents, caretakers and professionals regarding referral,
intervention and treatment options
-
help users document a child’s history, behavior, problems and needs
-
support parents, caretakers and professionals who are seeking information
and resources for youth with emotional, behavioral and psychological
problems
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provide guidance and options for professionals conducting interventions
for youth at-risk
Professional and Ethical Issues
Online behavioral screening, evaluation and assessments are offered
by professionals and nonprofessionals. Unlike unlicensed providers of
these services, health care professionals have certain professional and
ethical issues that must be considered when developing and offering online
services. These issues can be identified through review of the professional
literature, ethical principles set forth by professional organizations and
professional codes of conduct. The issues and recommendations outlined are
not exacting - especially in areas where advancements in health care and new
technology is being introduced. Due diligence and work respecting
professional and ethical guidelines require
continuous effort. This is especially true in the area of emerging health
care technologies.
Risk Management and Quality Assurance.
Professionals developing
online evaluation systems cannot anticipate every possibility or potential
problem but they must make a good faith effort to explore, identify and
address issues so as to minimize the risk and degree of harm to those using
these services. Ongoing research and quality assurance activities are the
best ways to assure the quality of emerging technology-based health care services. Professional
consultation and oversight are excellent means to accomplish
these goals. MRI has established a consultation and research relationship with
StepOne, LLC.
MRI is working with StepOne providing consultation,
review of program development activities and support of ongoing research activity.
Initial Issues and Guidelines For
Development and Operation of StepOne
The following is a summary review of professional issues and concerns
that have potential bearing on the development and operation of StepOne.
The primary resource for this overview is by Barak (2003a, 2003b).
Issues are identified below along with potential guidelines. Additional "white
papers" have been written to outline issues in greater detail. For
additional information see StepOne statements
regarding
privacy,
terms of use and
proper use. The primary source of information
for the following discussion is based on the references that follow.
Computer and Internet Skills.
Completing an online
screening questionnaire or behavioral
assessment requires certain skills. The lack of computer skills could be a
handicap in some circumstances. StepOne is designed to be used by any
person who can operate an Internet Web browser, complete a form on a Web
site or use a simple word
processor. An expert user would be a person who can complete online forms
or purchase goods or
information on the Internet.
Screening For Appropriate Use.
Professional and ethical codes call for checking the applicability of
and instrument and procedures as well as adapting those procedures to specific
individuals with regard to such things as age, gender, language, education,
etc.. To ensure appropriate use the Website home page has been designed to identify potential users.
To access the StepOne reports and questionnaires users must read
and agree to rules and terms of use. They must also pass a test that
measures their understanding of the terms of use. Users are notified of
the minimum requirements in order to expect a reliable and
valid result. Potential users have the option to obtain non-urgent
consultation from StepOne before using these resources.
Personal Intervening Factors.
While completing an online
questionnaire it important that the user be informed of personal
limitations that could affect the results. StepOne attempts to gather personal
information to disqualify or qualify the user. This information
includes language, education, reading levels, etc.. A user completing
surveys and questionnaires should be well rested, free from distraction and
should not be under the influence of any medication, drug or substance that
could impair their mental or emotional status. Information is provided to exclude potential users as well as qualify the result in the reports generated. The
Website policy states that potential users should not complete any questionnaire against
their will or under coercion.
Cultural Bias.
Internet is global, providing access to
potential users everywhere. Significant cultural differences can have a potential
affect on the outcome of questionnaires. For this reason, StepOne
should be used by people who speak fluent English as a primary language.
They should be residents of the United States. Users who do not meet this criteria
are cautioned as this may affect the results.
Privacy. Historical concerns regarding the use of the
Internet have centered around the ability to insure privacy and
confidentiality. Since
2002, improvements and enhancements make it virtually impossible to
intercept and read information transmitted between computers and Web sites
using secure socket layers and 128 bit encryption.
To further enhance security, the Website is also hosted on a dedicated server that is managed
and administered by StepOne. They system is located in a secure key
card access facility in which data is contractually private. StepOne is designed to be more secure than
postal mail and a locked file cabinet.
Use of Results.
StepOne does not provide treatment,
emergency, crisis, evaluation or diagnostic services
and is not a health care provider.
Only a qualified or licensed health professional in a face to face contact can legally diagnose and
treat mental health problems. StepOne software helps systematically
gather and organize information. The reports identify issues and raise concerns that a
user can
discuss with a qualified professional. As part of a contractual agreement,
behavioral and health survey information gathered at this site will not be
viewed or released to third parties. With the exception of internal research, your consent, your explicit written permission
or a valid court order is necessary for such a release. Identifying
information is removed from all files during research activities.
Technical Failures.
There is no evidence to suggest that StepOne will be any less
reliable than a large number of professionals conducting the same number of evaluations.
In fact StepOne questionnaires are probably more reliable. Computer crashes are
less common as the technology, backup system and
self-correcting nature of operating systems improve. StepOne is
hosted on dedicated server that provides routine backup on a secure Web
site. The entire Web site has been developed on a stable platform using
state of the art software and hardware. In addition, non-urgent technical support is available by
phone. Support staff have the resources to recover, restore and process
saved files from mirrored files and daily backups.
Contracted Relationship.
The Internet is difficult to regulate. For this reason, StepOne provides a
limited contractual agreement to provide limited technical support, fee-for-service consultation, security and privacy for users.
Terms of Use (Informed Consent).
Virtually any professional evaluation service
requires not only consent but informed consent. StepOne aspires to provide information that
will allow a potential consumer to locate a qualified health care
professional and make an informed decision with that person. For this
reason, the user must agree to our terms of use in order to access the
questionnaires. While it is not possible to
foresee every potential problem in an emerging technology, it is possible
to provide information about the benefits, the risks and potential
for harm. StepOne provides explicit information and a disclaimer as a
condition for using these resources. Users can only gain access to the
questionnaires and reports after correctly responding to questions that
measures the users understanding of the terms of use. In addition, users can request nonurgent fee for service consultation with a professional
before or after using
StepOne services.
Information about
StepOne Questionnaire and Reports.
A few potential clients will be interested in reading information about the
purpose, developers, basic statistical properties, applicability and
possible use, limitations and privacy of results generated in our reports.
StepOne expects that
few if any clients will be interested in detailed description of the
clinical logic and programming of StepOne. The programming and logic
used by StepOne is extremely complicated. It is practically
impossible to provide a detailed description that would be comprehensible to
the lay person or even to most professionals. Potential clients who want such information
should not use these resources and are advised to
contact a professional who is familiar with online testing and
StepOne. Detailed information specific to the clinical, psychometric
and internal logic of StepOne is proprietary and is not available
except for legitimate research and contracted oversight. StepOne
research and oversight activities are provided by Mentor Research Institute, an independent nonprofit charitable organization.
Standardization. In order to
ensure the results of any test or questionnaire are reliable it is
important that all users be given identical instructions and that similar
questionnaire administration procedures are consistently used. Online
procedures for gathering information may vary from one Website service to the next.
StepOne procedures for all questionnaires are nearly identical. The
questionnaire and procedures have been designed by expert professionals.
Alpha and beta testing is routinely implemented by StepOne to ensure the look, feel and process is
standardized and reasonable. The questionnaire has been designed to be
completed in a reasonable amount of time. The user is encouraged to complete
each section of the questionnaire in one session. Each section is designed
to be taken independently of other sections.
Meaning and
Use of Reports. StepOne reports are not intended or designed
to be diagnostic or treatment tools. The questionnaires and surveys are
designed to reliably gather and organize information in a meaningful manner
for parents and caregivers. Potential problems and issues are raised and
presented in a manner that must be considered tentative findings. The
findings must ultimately be
reviewed or discussed with a qualified health care professional.
Recommendations are structured to facilitate contact and communication between
the user and a qualified health care professional. StepOne services
should not be used as a substitute for face-to-face evaluations and
recommendations, nor should they be used to interfere with existing health
care relationships.
Commercial/Non-profit Activity.
StepOne was developed by a a commercial enterprise. However,
screening services are offered to parents and caregivers in Oregon at no
charge. StepOne is working to minimize the cost for
services. A fixed number of screenings will be donated for charitable use in
other states.
Up to 10% of profit is donated as a charitable contribution to support youth
programs. The cost of StepOne reports is very low and a very good value
relative to the cost of similar information processing activities. The
Website is the result of research activities conducted since 1989.
Copyrights. The questions
used by StepOne have been developed three ways. All questions were
developed clinically by a licensed clinical psychologist over a 10-year
research period. These questions were then compared and contrasted with the diagnostic
criteria in the Diagnostic and Statistical Manual of Mental Disorder version
4 revised (DSM-IVTR) and the International Classification of Disorder
version 9 (ICD-9). Critical sections were then reviewed by a group of
psychologists. Additional questions were developed by reviewing other
questionnaires for content suggestions. Permission to adapt and modify
questionnaires developed by other authors was obtained in all cases. No
questionnaires were adopted in total for use by StepOne. Normative data and protocols were derived clinically and
empirically relying on noncopyrighted empirical data as guidelines. Initial
testing of the Website also includes modifications based on
information gathered as part of the Website's research mission. All
information, procedures and normative data used by StepOne is
considered proprietary and the intellectual property of StepOne, LLC.
Personal Assistance and Support.
StepOne recognizes that some clients or potential clients will need to
speak with a person who is knowledgeable about the processes, results and
all other questions that would help a client make an informed decision.
Potential clients should obtain consultation if they have any questions
before purchasing services and if they have any reservations or
concerns. StepOne offers nonurgent fee-for-service consultation to clients and
potential clients. StepOne does not provide diagnostic, treatment or
emergency services of any any kind. StepOne cannot guarantee the ability to respond to all
requests for consultation. Potential users should contact a qualified health
care professional if they have urgent concerns and problems. Nonurgent
technical support is available without charge by email.
References
American Psychological Association (2002). Ethical
principles of psychologists and code of conduct. American Psychologist, 57,
1060-1073.
American Psychological Association (2004).
Psychological testing on the Internet, 59, 150-162.
Anastasi, A. (1997) Psychological testing (7th ed.)
Upper Saddle River, NJ: Prentice Hall.
Barak, A., & Buchanan, T.
(2004).
Internet-based psychological
testing and assessment. In
R. Kraus, G. Stricker, & J. Zack (Eds.),
Online counseling: A handbook for mental health professionals. San
Diego, CA: Academic Press/Harcourt.
Barak, A. (2003b). Ethical and professional issues in career assessment on
the Internet. Journal of Career Assessment, 11, 3-21.
Kier, F. & Molinari, V. (2004). Do-it-yourself testing for
mental Illness: Ethical issues, concerns, and recommendations.
Professional Psychology: Research and Practice, 35, 261-267.