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Computer-Assisted Methods to Screen for Mental Health and
Addictive Disorders
There are nearly 40 million children in the U.S. who are 12
to 17 years old. Nearly 8 million of these children have a diagnosable
mental or addictive disorder. At the same time there is a scarcity of
qualified mental health professionals who can screen and treat these
children. As many as 5.6 million of these children are not being identified
or receiving help. Mental health services are not historically a priority in the U.S. Adequate funding by Federal, State or private insurance for screening and
treatment activities has not been available. The current estimated cost to
thoroughly screen
adolescents in America is between two and four billion dollars. There are
not enough mental health professionals to conduct qualified screening.
Because of a scarcity of resources and qualified
professionals there has been a great deal of research and professional interest since the 1990's in the use
of computers to screen people for mental health problems. These approaches,
by in large,
hold promise as an efficient means to screen youth for mental and addictive
disorders. There is also a wealth of research in man-computer interaction and the
use of computers in behavioral and psychological assessment.
Paperny and Hedburg (1999) demonstrated that a
computer can do a better job screening a person for health related
issues and that computer assisted
patient interviews can be less expensive and more reliable than face-to-face interviews.
There are two methods by which
children can be screened using a computer system. The first method involves
using computer systems that are designed to interview
the child. This approach is referred to here as a computer-assisted child
interview (CACI). The second method involves the use of a computer system
that is designed to interview the parents of children or reliable observers.
This system is referred to as a computer-assisted parent interview (CAPI).
In this case, the parents are informants.
Computer-Assisted Child Interviews (CACI)
In general, cooperative children are likely to answer questions administered by a computer
and more so than those
administered by a person. A computer-assisted child interview (CACI) is a
self-report measure. Westen & Weinberger (2004) argue that self-report
measures
are useful provided the patient has adequate self-observation skill,
clear memories and can accurately express their beliefs. They point out that
self-observation is also subject to errors. The mind is sufficiently complex that it is difficult to
minimize literacy and vocabulary requirements that are necessary to make diagnostic
and predictive judgments. Obtaining information necessary to identify subtle
mental health problems in children may not be accessible through self-report.
As the questions become fewer and simple, the domain of potential
corresponding disorders must become broad and general. As a result, a
distinction must be made between screening and diagnosis.
CACI follows a general
procedure that involves interview, information processing and follow-up. In
order to use a computer assisted child interview, a child would normally sit
in front of a computer, then read (or read and
listen) to questions that are asked by the computer. The child responds to
questions by
clicking on the appropriate answer. When finished, the computer then
processes the responses, generates a diagnosis or impression, and identifies
any risks such as those of violence or suicide. The machine generated report is given to the sponsoring school,
medical clinic or community mental health center for follow-up. The results are
written for professional audiences and are not appropriate for children or parents to read. Professionals
would normally conduct further evaluation
of the child in question based on this report and
then meet with parents. The process
is sponsored or administered by a medical clinic or a school in collaboration with
mental health professionals or a community mental health
agency.
CACI is based on the assumption that a child will be
accurate and cooperative. If they aren’t, then the whole process is subject
to bias and errors. The CACI approach relies on the child as the primary
source of information and gives the responsibility for assessment and
follow-up to physicians, schools, mental health professionals and public programs. Parents are involved in the
process after a determination has been made that there is a mental health
disorder or high risk problem. In some cases, the child may be involved in further evaluation and treatment before the parents are
even aware there is a "concern" or a "problem."
A CACI, for children, has
several logistical and professional challenges. Child interview approaches
usually require parental cooperation or consent, scheduled appointments, dedicated computers
and
professionals, a facility to interview children, a follow-up procedure, a referral procedure,
but most of all, children who will be honest, accurate and cooperative.
There are a number of advantages when using CACI. The
greatest advantage is the ability of this approach to gather information
directly from the child. This can be a particular advantage when parents
are not involved with their child or they are not able to provide reliable
information about their child's history and behavior. The CACI is very
powerful intervention when children want help and parents might prevent
public authorities from providing mental health services.
A weakness when using CACI pertains to matters of informed consent, which as a legal and ethical
matter, requires patients and subjects considering a diagnostic procedure, or treatment,
to understand the risks and benefits so that they can make an informed
decision. At what point children are deemed qualified to appreciate the risk
is already defined by state laws. In order for CACI to be used on every
child, legislation supporting CACI must be enacted that will bi-pass parental consent and involvement.
All treatment or diagnostic procedures carry a risk for harm. Such
harm includes social stigma, self-harm and potential limitations on life,
liberty and pursuit of happiness. As a matter of law, any professional or
agency who does not
provide informed consent, or limits individual freedom without due process,
may be criminally responsible or civilly liable for any subsequent harm.
Computer-Assisted Parent Interviews (CAPI)
Parents are obviously not trained or qualified to diagnose
and treat their children. Training parents to identify and diagnose mental health problems
is problematic and could be expensive as well as unrealistic. Instead of
training parents to replace the role of a clinician, parents can be a
valuable and reliable source of information. Instead of interviewing
children, as is the case in a computer-assisted child interview (CACI), a
computer-assisted parent interview (CAPI) gathers information from parents who serve as
informants.
CAPI is based on the assumption that the
report of parents (not the
child) will be comprehensive, accurate and cooperative. If they aren’t, then the
whole process is subject to bias and errors. The CAPI approach relies on one
or more parents as the primary source of information and gives the
responsibility for follow-up to the parents. Multi-informant procedures
provide a greater measure of reliability, confidence in the results, validity
and utility. In order to use this approach,
parents must be present and involved in their child's life so they
have accurate information regarding their child's history, behavior and
feelings.
There are a number of advantages and disadvantages that are
apparent when using a CAPI.
Parent Involvement. CAPI is designed to involve
parents in a computer-assisted interview process. The process
simultaneously
gathers information and serves as the first step toward intervention.
Involvement can led to parental investment in both the process and
subsequent decisions. Involvement can increase awareness, observation and
interaction between parents and their child. Parent interaction over their
respective responses and communication about their child can increase when
two parents participate in the same interview process. Differences of
opinion and possibly conflict may surface. The weakness in this approach is
that some parents do not want to be involved in this process either because
they wish to avoid conflict, don't care, don't believe it is important or do
not trust the process. Clearly, parents who are not involved with their
child, or do not want to participate in their care, can undermine this process.
Parent Education. A CAPI approach will expose parents
to questions regarding their child that they may have never considered or
noticed. Participation in a CAPI can educate and sensitize parents to
potential behavior and emotional states that have a bearing on their decisions as
parents. Parents who care about their child can learn more about certain behaviors
and history that can be used to help them be more effective as parents. In some
cases, parents will get to know their child better, pay closer attention and
talk more with their child. Parents may even talk more with each other when
they realize they do not know the answer to important questions or differ in their
responses.
Parental Empowerment. A CAPI is designed get parents involved,
increase awareness, provide information and educate parents. In effect, this approach
empowers and puts parents in charge
of subsequent decisions. Parent involvement, education and information
empowers parents in a number of ways. Parents who are knowledgeable and
credible are in a better position to advocate and make appropriate choices.
Rather than relinquishing responsibility for parenting issues and treatment,
parents become more involved.
The CAPI approach depends on a parent who must be
qualified as a reliable
informant. No appointment is necessary. Parents can screen their child at
any time and re-evaluate their child if necessary. Physicians and mental health
professionals do not need to schedule
appointments for screenings, provide a place for an interview and they do not need to
provide a computer or technical support to maintain and process information.
In addition, health care professionals are not responsible for the results, nor are they obligated to
provide intervention, treatment or referral services to children. The
responsibility and right to seek help remains with parents. Depending on
privacy issues, parents may be able to use their own computer, a
friends computer or a computer at a library, clinic or school. CAPI is based
on a belief that parents not only have the responsibility but the right to
advocate for additional screening, evaluation and treatment services based on what they
believe is appropriate and necessary.
Some parents are not as involved with their children as much
and they should. When absent parents are asked to screen their child using a
CAPI, they
are likely to discover that they need to get involved and pay more attention to
their children. The CAPI approach is a much better approach than a CACI when children
are likely to be dishonest, misleading and uncooperative.
Summary
Children can provide reliable information for screening
purposes if they have adequate self-observation skills, clear memories and
the ability to recognize and articulate their behavior and history.
Computer-assisted child interviews (CACI) can be used to screen children who
are voluntary, can make an informed decision and those who have parental
support and confidence in the process.
At the same, many parents can be reliable informants. They
have a wide observational base, can see what their children are doing, and
they have information as to how their children think and feel.
Involved parents can provide a detailed history of their child.
Parents may not understand or appreciate the
full significance of what they see and know, but they can be reliable informants. A CAPI
approach can be used to screen children who are not willing to participate
in the process and in cases where parents do not want their child screened
using a CACI approach. Both approaches have merit. The approach used should
depend on the child and their parents.
References
Mental Health: A Report of the Surgeon General.
Rockville, MD.: U.S. Department of health and Human Services, Substance
Abuse and Mental Health Services Administration, Center for Mental Health
Services, National Institute of Mental Health, 1999.
Paperny, D. M., & Hedburg, V. (1999). Computer-assisted
health counselor visits: A low cost model for comprehensive adolescent
preventive services. Archives of Pediatric Adolescent Medicine, 153,
63-66.
U.S. Public Health Service, Report of the Surgeon General's
Conference on Children's Mental Health: A National Action Agenda.
Washington, DC: Department of Health and Human Services, 2000.
Westen, D., & Weinberger J. (2004). When clinical
description becomes statistical prediction. American Psychologist,
695-613.
Dated:
December 30, 2007 |